Since its creation, the Rare Diseases Foundation has remained faithful to its ambitions helping to diagnose, develop treatments and improve the life of patients and their families. In 2015, thanks to your donations, the Rare Diseases Foundation was able to fund 55 projects to accelerate research for all rare diseases.
Les Etoiles Rares Team sincerely invites you to support the Fondation maladies rares together with us.
We propose you to chose the most convenient way to become a committed partner of our event:
To get all the information on how to become a guest please feel free to contact us directly
Contact us directly:

[email protected]

Or fill in the form and we will contact you in the most convenient way for you
Thanks to the funding by the Foundation of a project in congenital myopathies, severe genetic neuromuscular diseases with a pediatric onset, new genes have been identified and their roles in the disease mechanism have been confirmed.
Make a secure payment through the website of our parent organisation of Fondation maladies rares
By visiting the Fondation maladies rares donations page you can also use the helpful tool to calculate your fiscal reduction to see there real value of your donation.

Please add the label "Les Etoiles Rares" into the comments area so we can mention your commitment during the evening event and of course value our project and understand whether we doing it right.
All donations to the French Foundation for rare diseases are tax deductible, according to applicable laws: 66% of income tax (with a threshold of 20% of the taxable income), 60% of corporate tax (with a threshold of 0.5% of the revenues), 75% of wealth tax (with a threshold of 50 000€).

The Foundation had funded a step of preclinical research using the oxytocin hormone, to treat feeding and behavior disorders in Prader-Willi syndrome. The steps have led to further developments and the first clinical trials on sick children have shown a significant improvement of their feeding and social behaviors.
Made on